Oh buddy I'm sorry
They thought that I might have AS a couple years ago. I tested positive for the HLA-B27 gene marker, but they since can't find any radiological evidence that I have it so they are still kinda scratching their heads. My SED rate and C reactive proteins are always high so I have some kind of inflammatory response going on. Anyways It's mainly my back and neck that bothers me. I assume that you know of this forum (kickas.org) there is some good info there about AS. All I can say is hang in there buddy, pain sucks for sure I'm glad your Pioneer is helping you get things done.
I was in that limbo for a little over three years of trying to figure out what it was.
We found the HLA B27 about a year in. After seeing three specialists my doctor actually pulled out this giant medical book and we started flipping through it together. That's when we did the genetic test, and initial low back hip films. It wasn't until this summer that the radiologist confirmed it.
I've tried two rounds of treatments for it, with no benefits. Slated to start a third, but the last one caused internal bleeding and well, I just needed a break from all the scary meds. So now I chew on Vicodin and oxycodone all day long...
Unfortunately mine is the super aggressive kind, iritis a lot at first and it's also been attacking my heart and intestines.
I hope when they find out what's up with you that your lucky enough to get something with a cure, or a good treatment. Feeling sick and or being in a bunch of pain every day gets old pretty fast.
I'm also lucky enough to have a leg that has been rebuilt 6 times going on 7. Oh and this separated shoulder that became a chronic condition.....
So comfortable cabs that I fit in get a big fat A+ from me!
Good luck to you too.